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Name: margalit
Location: Massachusetts, United States Professional writer, educational advocate, opinionated ultra liberal mother of 18 year old twins, living life in the slow lane due to hypertrophic cardiomyopathy, congestive heart failure, and diabetes.

email: margalitc at yahoo dot com

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Thursday, October 18, 2007

Quick Girl Update

We went to the hospital today at 10:30, and at 5:15, when I left to go home, we still didn't have a solid plan. She's probably going to stay overnight at the local pediatric ER and then we'll know tomorrow what's going on.

Suffice it to say my hair is grayer today than it was yesterday, and as she was talking to the various therapists and insurance people today, I learned a lot more about what is going on and man, it ain't pretty. Much of it I knew, some of it I suspected, but there's always that bit that you just don't suspect that comes up to bite you in the ass.

I'm exhausted. I didn't sleep last night at all, so I'm close to zombie-esque right now. I'm going to try and sleep a bit between the phone calls coming in. The one thing about having such a huge mental health support system is that all the therapists like to check in. Often. I appreciate that they do, but I'm so tired that it's almost painful to talk to them.

So that's where things stand right now.

Of course, just as I predicted, the Boy had a particularly bad day today at school, with the program director calling me to ask me if he should send him home. But I was already gone and at the hospital. Too bad, so NOT sad. He had to spend the whole day in school. Heh.

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4 Comments:

Blogger blackbird said...

I'll be thinking of the three of you.

18/10/07 6:30 PM  
Blogger Dave2 said...

I'm a zombie too. Want to meet for breakfast and share some brains? :-)

18/10/07 8:07 PM  
Anonymous Rhea said...

God, it sounds so tough.

18/10/07 10:59 PM  
Blogger JaniceNW said...

I'll try and call you this weekend. I just want to say I feel you are doing a fabulous job as a mother and an advocate for your children.. I know it's difficult but they lucky to have a mom who is concerned about their needs as much as you do.

Love ya, hon.
Smoochey, smoochey.

19/10/07 12:24 AM  

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