The day she became real
When things got bad in CA and we decided to move back to Boston, one of the great deciding factors was that Dr Greene was located in my very city. How convenient, I thought. As soon as we came back, I called his office and to my absolute disgust I found that he didn't take any insurance. The guy charges and arm and a leg, and his office help, who are one step away from total bitches, said that we had to pay them in full, and then submit the bill to our insurance company who may or may not pay the bill. I checked with our state medicaid insurance and guess what? They didn't cover Dr Greene due to cost factors.
That didn't stop me from reading the book a second and third time, hoping that I would find the secret to dealing with explosions, but of course I never did. I did, however, find a great psychopharm at Children's that finally diagnosed the Boy and the rest is history. I still own the book, although I haven't looked at it in a few years. I know a second edition has come out and I've not seen that at all, but I still recommend this book as a starting point for families in crisis with explosive kids.
Today, in my parents group, we were discussing this and that, and one of the parents was talking about her daughter and related a story that was in the Ross Greene book. This mom told me that she took her daughter to Dr Greene when he was first starting out, and that yes, it was indeed her daughter's story that was in the book. Small freaking world, eh?
The thing is, her daughter, who is now married and a mom herself, is JUST LIKE the Girl. I mean they could be clones, not in looks, but in how they view the world. They both have the same NVLD diagnosis, and we can finish each other's sentences with the exact reactions that both our girls would have. She is the ONLY parent that get it for me. I know many parents of special needs kids, but their kids are all different. Even the kids diagnosed with Aspergers, who are supposed to be interchangable with NVLD kids, are totally different. We get each other because our daughters have the exact same symptoms and issues and this has got to be the most comforting thing in my life right now. She gets it. She totally gets it. And I get her daughter's stuff, too. Stuff that is still going on even though she's an adult woman now. Because NVLD is a lifelong disability that doesn't change or disappear or is even helped with medication.
Joining this parenting group has been the biggest Godsend in my life. I love the other parents, they all have kids just like mine and we GET what each other are going through. The kids have a range of issues, but the actuality is that they are all explosive, and when you know other normal regular families, good families, that have kids like this, it's just the most amazing feeling of finally belonging to a club that gets it. I know most of the people that read my blog must think I'm the worst parent in the world, that my kids are terminally fucked up, that I sit on my ass and bitch about them all day long, and that I don't love them. I've seen enough negativity about my children elsewhere to know how judgemental some people, especially those without teens, never mind teens with mental and neurological issues, can be. All I can say is, judge all you want. I know a bunch of parents who are the nicest, kindest, most supportive people ever, and they all have kids just like mine! Stumble It! JBlog Me